Patient and Professional Organizations
Patient Organizations
| Hadley | |
Professional Organizations
| American Academy of Ophthalmology |
Patient Organizations
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American Diabetes Association® - Focus on Diabetes™ Focus on Diabetes™ is a multi-year initiative that brings together the American Diabetes Association and Visionary Partners from leading organizations in vision care to increase awareness about diabetes and eye health. This initiative provides easy steps and valuable information and experiences to prevent diabetes-related eye disease and preserve eyesight. |
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American Macular Degeneration Foundation www.macular.org (888) 622-8527 The American Macular Degeneration Foundation (AMDF) is a non-profit organization committed to improving the lives of those affected by Age-related Macular Degeneration (AMD) through research, education, advocacy, and direct response to individuals requesting information. The organization raises public awareness of the disease while funding a results-oriented, national research agenda which makes allies of the scientific community, the government, other mission-aligned nonprofits, and people and their families who are living with AMD. Patient Resources: The Eat Right for Your Sight Cookbook Eat Right for Your Sight™, by Jennifer Trainer Thompson and Johanna M. Seddon, MD, ScM identifies foods that have been found to help reduce the risk and progression of AMD -- foods like salmon, eggs, corn, blueberries, peppers, and leafy green vegetables -- and provides fun, varied, and delicious ways to make them a regular part of your diet. Seddon is one of the leading experts in the field of age-related macular degeneration, and Eat Right for Your Sight is a practical expression of her research, a way of incorporating the science behind vision health and overall well being into daily life. To create Eat Right for Your Sight, she teamed with journalist and cookbook author Thompson to develop recipes using key foods for eye health. They commissioned celebrity chefs and favorite restaurants to contribute recipes as well, including Alice Waters, Jacques Pepin, Debra Samuels, Lidia Matticchio Bastianich, Ina Garten, Dr. Andrew Weil, Canyon Ranch, Lake Austin Spa Resort, and the now-closed Green Street Café in Northampton, MA. Eat Right for Your Sight Cooking Show The Eat Right for Your Sight Cooking Show combines science-based recipes to reduce risk and progression of AMD with low vision safety and accessibility tips for cooking.
Mind, Body, Spirit videos These videos help patients manage the non-medical aspects of living with AMD.
AMDF MedLive: Educational Programs for Those With AMD |
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BrightFocus Foundation funds groundbreaking research in an urgent effort to discover cures for Alzheimer's disease, macular degeneration and glaucoma, and provides expert information about these diseases. |
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Foundation Fighting Blindness www.blindness.org (888) 394-3937 The Foundation Fighting Blindness was established in 1971 by a passionate group of families whose mission was to find treatments and cures for blinding retinal diseases that were affecting themselves or loved ones. The Foundation has emerged as the world’s leading private funding source for retinal degenerative disease research, having raised more than $816 million toward its mission. The Foundation is committed to eradicating the entire spectrum of retinal degenerative diseases including retinitis pigmentosa, Stargardt disease, Usher syndrome, and age-related macular degeneration. The Foundation’s Professional Outreach team was formed to build and cultivate relationships with eye care professionals and others who serve individuals with vision loss due to an inherited retinal disease. The overall goal is to raise awareness about resources available to patients with a retinal dystrophy and provide information, guidance and hope for individuals and families impacted by these diseases. The Foundation offers many resources for eye care professionals and their patients:
To find out more about the Foundation Fighting Blindness, visit www.fightingblindness.org, or email info@fightingblindness.org. |
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Hadley Founded in 1920 by William Hadley, an educator who lost his eyesight later in life, Hadley offers practical help, connection and support free of charge to anyone with a visual impairment, their families and professionals supporting them. Hadley provides online, large print, braille and audio media, reaching all 50 states and 100 countries. And more people learn braille from Hadley than from any other organization worldwide. Hadley's help conveniently meets learners where they are. Free of wait lists. Free of office visits. Free of charge. A 501(c)(3) non-profit organization, Hadley relies on contributions from individuals, foundations, and corporations to fund its programs. Patient Resources:
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Macular Degeneration Association One of the principal missions of the Macular Degeneration Association that distinguishes us from other vision organizations is our focus on patient education - Knowledge is Power! Patient Resources: |
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MD Support www.mdsupport.org Macular Degeneration Support is a world-wide non-profit public service organization founded by retired educator Dan Roberts. Its mission since 1995 has been to provide information and support for people who are affected by macular degeneration and similar retinal diseases. Known more simply as MD Support, it is based on the Internet and also offers a public awareness program designed to reach people who are without Internet access. The organization is supported and guided by a 17-member advisory board made up of leading professionals in the field.
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nei.nih.gov In 1988, Congress directed NEI to establish the National Eye Health Education Program (NEHEP) to develop education programs for professionals and the public. NEHEP’s overall goal is to collaborate with strategic partners to promote eye health as a public health priority and prevent vision loss through outreach and education. It also aims to:
NEI Digital Assets
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Prevent Blindness Founded in 1908, Prevent Blindness is the nation's leading volunteer eye health and safety organization dedicated to fighting blindness and saving sight. Focused on promoting a continuum of vision care, Prevent Blindness touches the lives of millions of people each year through public and professional education, advocacy, certified vision screening training, community and patient service programs, and research. These services are made possible through the generous support of the American public. Together with a network of affiliates, Prevent Blindness is committed to eliminating preventable blindness in America.
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| The Support Sight Foundation www.supportsight.org (888) 681-8773 |
Professional Organizations
| American Academy of Ophthalmology www.aao.org www.aao.org/eye-health |