Patient and Professional Organizations

Patient Organizations

American Diabetes Association® - Focus on Diabetes™ 

American Macular Degeneration Foundation

Foundation Fighting Blindness

Hadley 

Macular Degeneration Association

MD Support

Prevent Blindness

The Support Sight Foundation



Professional Organizations

American Academy of Ophthalmology  

Patient Organizations

 

American Diabetes Association® - Focus on Diabetes™ 
diabetes.org/asrseyehealth

Focus on Diabetes™ is a multi-year initiative that brings together the American Diabetes Association and Visionary Partners from leading organizations in vision care to increase awareness about diabetes and eye health. This initiative provides easy steps and valuable information and experiences to prevent diabetes-related eye disease and preserve eyesight.

Patient Resources


American Macular Degeneration Foundation
www.macular.org
(888) 622-8527

The American Macular Degeneration Foundation (AMDF) is a non-profit organization committed to improving the lives of those affected by Age-related Macular Degeneration (AMD) through research, education, advocacy, and direct response to individuals requesting information. The organization raises public awareness of the disease while funding a results-oriented, national research agenda which makes allies of the scientific community, the government, other mission-aligned nonprofits, and people and their families who are living with AMD.

Patient Resources:

The Eat Right for Your Sight Cookbook

Eat Right for Your Sight™, by Jennifer Trainer Thompson and Johanna M. Seddon, MD, ScM identifies foods that have been found to help reduce the risk and progression of AMD -- foods like salmon, eggs, corn, blueberries, peppers, and leafy green vegetables -- and provides fun, varied, and delicious ways to make them a regular part of your diet.  Seddon is one of the leading experts in the field of age-related macular degeneration, and Eat Right for Your Sight is a practical expression of her research, a way of incorporating the science behind vision health and overall well being into daily life. To create Eat Right for Your Sight, she teamed with journalist and cookbook author Thompson to develop recipes using key foods for eye health. They commissioned celebrity chefs and favorite restaurants to contribute recipes as well, including Alice Waters, Jacques Pepin, Debra Samuels, Lidia Matticchio Bastianich, Ina Garten, Dr. Andrew Weil, Canyon Ranch, Lake Austin Spa Resort, and the now-closed Green Street Café in Northampton, MA.

 

Mind, Body, Spirit videos

These videos help patients manage the non-medical aspects of living with AMD.

AMDF MedLive: Educational Programs for Those With AMD


Foundation Fighting Blindness
www.blindness.org
(888) 394-3937 

The Foundation Fighting Blindness was established in 1971 by a passionate group of families whose mission was to find treatments and cures for blinding retinal diseases that were affecting themselves or loved ones. The Foundation has emerged as the world’s leading private funding source for retinal degenerative disease research, having raised more than $816 million toward its mission. The Foundation is committed to eradicating the entire spectrum of retinal degenerative diseases including retinitis pigmentosa, Stargardt disease, Usher syndrome, and age-related macular degeneration.

The Foundation’s Professional Outreach team was formed to build and cultivate relationships with eye care professionals and others who serve individuals with vision loss due to an inherited retinal disease. The overall goal is to raise awareness about resources available to patients with a retinal dystrophy and provide information, guidance and hope for individuals and families impacted by these diseases.

Patient Resources:

The Foundation offers many resources for eye care professionals and their patients:

  • My Retina Tracker Genetic Testing Program - no-cost genetic testing, genetic counseling, and patient registry
  • Clinical research and emerging therapy updates
  • Live and enduring webinars for eye care professionals and patients
  • Educational resources and disease literature
  • Local chapters and nationwide events
  • Scientific grants and awards programs
  • Continuing medical education courses (CME/COPE)

To find out more about the Foundation Fighting Blindness, visit www.fightingblindness.org, or email info@fightingblindness.org.  


Hadley 
www.hadley.edu
(800) 323-4238

Founded in 1920 by William Hadley, an educator who lost his eyesight later in life, Hadley offers practical help, connection and support free of charge to anyone with a visual impairment, their families and professionals supporting them. Hadley provides online, large print, braille and audio media, reaching all 50 states and 100 countries. And more people learn braille from Hadley than from any other organization worldwide.

Hadley's help conveniently meets learners where they are. Free of wait lists. Free of office visits. Free of charge.

A 501(c)(3) non-profit organization, Hadley relies on contributions from individuals, foundations, and corporations to fund its programs.

Patient Resources:


Macular Degeneration Association
www.macularhope.org 
(855) 962-2852

One of the principal missions of the Macular Degeneration Association that distinguishes us from other vision organizations is our focus on patient education - Knowledge is Power!

Patient Resources:


 

MD Support
www.mdsupport.org
(888) 866-6148

Macular Degeneration Support is a world-wide non-profit public service organization founded by retired educator Dan Roberts. Its mission since 1995 has been to provide information and support for people who are affected by macular degeneration and similar retinal diseases. Known more simply as MD Support, it is based on the Internet and also offers a public awareness program designed to reach people who are without Internet access. The organization is supported and guided by a 17-member advisory board made up of leading professionals in the field.

 

Patient Resources:

In addition to its website at mdsupport.org, MD Support maintains the International Low Vision Support Group, a global network of over 225 support groups hosted by retirement centers, senior organizations, clinics and libraries. Since 2006, this educational initiative has been reaching thousands of otherwise “unconnected” seniors with the information and resources necessary for living successfully with central vision loss. In addition, MD Support is associated with Prevent Blindness, providing extensive resources for it’s “Living Well With Low Vision” section (lowvision.preventblindness.org), and the organization is also a founding associate of AMD Central (amdcentral.org), a collaboration of five leading patient advocacy organizations offering information and tools to improve the quality of life for persons diagnosed and living with AMD. 


 

Prevent Blindness
www.preventblindness.org
(312) 363-6001

Founded in 1908, Prevent Blindness is the nation's leading volunteer eye health and safety organization dedicated to fighting blindness and saving sight.  Focused on promoting a continuum of vision care, Prevent Blindness touches the lives of millions of people each year through public and professional education, advocacy, certified vision screening training, community and patient service programs, and research.  These services are made possible through the generous support of the American public.  Together with a network of affiliates, Prevent Blindness is committed to eliminating preventable blindness in America. 

Patient Resources:


 
The Support Sight Foundation
www.supportsight.org
(888) 681-8773

Professional Organizations

                               American Academy of Ophthalmology
www.aao.org 
www.aao.org/eye-health
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